Posts tagged mental illness
A Mother Had a Daughter Who Had an Eating Disorder
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Yesterday on Twitter, a blogger who had read my Dr. Phil anorexia post tweeted to me. I went over to look at her blog and felt the familiar stomach drop when I read this:

A month ago, in Flagstaff, SB had a Subway sandwich for dinner Friday night and at lunch on Saturday she had a few of the sweet potato fries I'd ordered for the table. Yesterday, when it was suggested she needed to drink Gatorade to combat the recent dehydration that led to her fainting twice and being rehydrated in the E.R. this past Sunday, she cried. And said no.

As a mother, my stomach drops for the blogger. As a recovered anorexic, my stomach drops with muscle memory. 

I'm reading THE MATHEMATICIAN'S SHIVA by Stuart Rojstaczer. In a book within a book, the protagonist's mother writes about going with only a tiny bit of food a day in war-torn Russia. Her description of hunger is spot-on:

I want you to follow my instructions. Take your eyes off this page when I tell you to do. Look at the room around you. Wherever you are, simply open your eyes adn look, listen, smell and think whatever thoughts come your way ... Then imagine all of your awareness disappearing. Your eyes work, yes, but they don't see anything. Your brain won't let you process such information. The smells, they are gone, too. Your ears, they work simply to warn you of danger. Your thoughts, all of them are so uncomplicated and pure ... All is about the numbness inside you ... You are truly in hibernation. Everything has slowed, because any processing, physical or mental, requires energy, and that, if you are truly nutrient-deprived, is precisely what you don't possess.

When I read that, I remembered crying from hunger. And I also remembered crying from fear of what would happen if I ate, because the hunger was easier to tolerate than the fear. The space between those places is anorexia. I wrote about that motivation and that place in my young adult novel, THE OBVIOUS GAME. Writing about it forced me to go back and experience those feelings again, and it was no fun. However, it's important for those of us who are recovered and feeling brave to talk about life after an eating disorder, because when you're in it, you can't imagine life on the other side of it. I keep writing. I'm here. I'm on the other side. It blows my mind that I still get 2-3 emails a week from people who love someone with anorexia. They are desperate. They have no idea what to do with this thing they don't understand at all. They want me to tell them what to do. I can't totally do that. I'm not a psychologist or doctor. All I can do is try to explain how their loved one feels so they can support that person in the best way possible.

My new friend Jenn told me about the March Against ED next week (September 30) in Washington, DC. I wish I would've known about it earlier, because I think I would've tried to go. If it happens again next year, I will be there. There is so much misinformation about mental health in general, and anorexia is one of the few mental disorders you can see on a person, which I think contributes to even further misunderstanding, because you form opinions without knowing the person at all just by looking at them. 

I have a list of ED resources in my Young Adult category up in the masthead. I will be updating that list with some more from Jenn. I was never inpatient anywhere (I threatened to run away and I was 18) and I ended up recovering physically in college and mentally in my thirties. 

They were deep ruts in my brain. Deep, self-loathing ruts. Filling them in was the hardest thing I've ever done, and it's what I want for every disordered eater out there. It can be done.

I'm relieved to hear Jenn's daughter is in recovery. There are many other people whose sons and daughters aren't. I know. They email me. It's best if you catch it early. It's often comorbid with other mental illness and therefore hard to separate or identify. (Is she not eating because she's anxious? Is she counting her calories because she's OCD?) If you think there's a problem, it's better to err on the side of caution, just like you would if your kid suddenly sprouted an unexplained lump in her breast or a persistent ache in her teeth. Please don't assume what you see on television is real. It's not dramatic or romantic or disgusting. It's someone who is hurting really, really bad. Someone hungry in every sense of the word.

 

In Celebration of Katherine Stone

In preparing to write this post honoring my friend and activist/entrepreneur, Katherine Stone of Postpartum Progress, I searched my gmail, which has also archived my old hotmail account, to see when we first found each other. I dug up an email from Katherine dated April 15, 2009, which would've been a few weeks after my daughter's fifth birthday and about a year after I started getting help and taking medication for my anxiety disorder. Katherine wrote:

This Mother's Day - Sunday, May 10 -- Postpartum Progress will host its first annual Mother's Day Rally for Moms' Mental Health.  Each hour, on the hour, for 24 hours straight I will post a different "Letter to New Moms" written by survivors of and experts on perinatal mood and anxiety disorders.

That email signified just one of Katherine's countless efforts to make moms suffering from mental illness feel more normal. I did write that post, and Katherine and I have written for one another on the subject of maternal mental health again and again, knowing we can prop each other and even strangers up over the miles with our voices. 

The first time I remember clearly having a long conversation with Katherine in person was at Type A Mom in 2010. She was a little intimidating with her long, red hair and tall, lanky self and these totally adorable sparkly heels, which she later said her kids bought her. The kids and the shoes stuck, because it's important to remember even people who present as physically beautiful and loomingly tall and effortlessly stylish are people with insecurities and doubts. It's easy to meet people at blogging conferences and think they are perfect, but nobody is perfect, and everyone has her struggles. Katherine embodies that dichotomy for me.

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Here is this person who looks completely pulled together but who is so willing to share her pain in order to make the rest of us sitting around in our yoga pants and flipflops feel human again. For that, Katherine, I salute you.

Last year, while covering the Olympics at BlogHer, I had to come up with a group of bloggers who fought for their dreams, and the very first person I thought of was Katherine, who said:

I always felt I needed to do something meaningful with my life but continually struggled to figure out what it was. Then I was struck with postpartum depression and I had this gut reaction – the kind that nags at you that you can only ignore for so long until you must act – that I needed to help other women. It's hard to imagine something so awful could lead you to your avocation, but it pushed me toward focusing my life on being a voice for suffering pregnant and new mothers.

It's been my great pleasure and honor to watch Katherine over the years blossom and grow and fight to become the owner of the most widely-read blog on PPD in the world. Thank you, Katherine, for all that you do. You are amazing. Congratulations on ten years at Postpartum Progress.

 

Thanksgiving Is a Special Kind of Hell When You're Anorexic

Thanksgiving posts have taken over the internet, and everywhere I look I am confronted with pictures of food. 

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When I was anorexic, Thanksgiving was my least favorite holiday. My extended family got together, and someone always made pie that not only had half the calories of my daily self-imposed limit, but also came attached with happy childhood memories and the knowledge it was made by someone I loved very much.

Holidays can be hard for any number of reasons, but for anorexics and their people, they contain so many potential landmines. If the anorexic has been hiding out under baggy clothes, her condition might not be noticed as much by those who are with her every day, but it will be glaring to someone who hasn't seen her in six months or a year. When an entire holiday is about eating too much, not eating or eating very little makes everyone else sit up and pay attention. Someone not eating can make someone who has overeating problems feel doubly defensive. Plus, family. Just family. It doesn't take much to set people off who have been forced to leave their own houses and spend an afternoon crowded together being thankful.

Then there's being thankful. It's hard to be thankful when you're depressed or in the grips of anxiety or OCD or an eating disorder. My head was extremely crowded in those years, mostly thinking about food I wouldn't let myself eat. 

I'm thankful every day that those painful Thanksgivings are behind me now. This is the first Thanksgiving I've had something to offer besides a blog post for those who are anorexic or those who are going to find themselves sitting across the table from a very thin person and worrying this holiday season. For less than the price of a turkey, I can offer my novel. 

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I haven't done a lot of promotion in the past six months here, but I wanted to share the background of my book again for anyone new. 

“Everyone trusted me back then. Good old, dependable Diana. Which is why most people didn’t notice at first.”

"Your shirt is yellow."

"Your eyes are blue."

"You have to stop running away from your problems." 

"You're too skinny."

Fifteen-year-old Diana Keller accidentally begins teaching The Obvious Game to new kid Jesse on his sixteenth birthday. As she buries her shock about her mother's fresh cancer diagnosis in cookbooks, peach schnapps and Buns of Steel workouts, Diana both seduces athlete Jesse and shoves him away under the guise of her carefully constructed sentences. As their relationship deepens, Diana avoids Jesse's past with her own secrets -- which she'll protect at any cost. Will Diana and Jesse's love survive his wrestling obsession and the Keller family's chaos, or will all their important details stay buried beneath a game? 

Praise for The Obvious Game:

"Lovely, evocative, painful and joyful all  in one ... much like high school." --Jenny Lawson, author of LET'S PRETEND THIS NEVER HAPPENED 

“I couldn’t put down THE OBVIOUS GAME. Arens perfectly captures the hunger, pain and uncertainty of adolescence.” -- Ann Napolitano, author of A GOOD HARD LOOK and WITHIN ARM'S REACH

"THE OBVIOUS GAME is a fearless, honest, and intense look into the psychology of anorexia. The characters—especially Diana--are so natural and emotionally authentic that you’ll find yourself yelling at the page even as you’re compelled to turn it." -- Coert Voorhees, author of LUCKY FOOLS and THE BROTHERS TORRES

"Let’s be clear about one thing: there’s nothing obvious about THE OBVIOUS GAME. Arens has written a moving, sometimes heart-breaking story about one girl’s attempt to control the uncontrollable. You can’t help but relate to Diana and her struggles as you delve into this gem of a novel." -- Risa Green, author of THE SECRET SOCIETY OF THE PINK CRYSTAL BALL

"THE OBVIOUS GAME explores the chasms between conformity and independence, faith and fear, discoveries and secrets, first times and last chances, hunger and satisfaction. The tortured teenage experience is captured triumphantly within the pages of this unflinching, yet utterly relatable, novel. -Erica Rivera, author of INSATIABLE: A YOUNG MOTHER’S STRUGGLE WITH ANOREXIA 

Book Information:

Publisher: Inkspell Publishing

Release Date: Feb 7th, 2013

ISBN: 978-0-9856562-7-0 (ebook), 978-0-9856562-8-7 (Paperback)

Paperback Price: $13.99

Kindle: $4.99

Thanksgiving is a time when things start coming to a head for Diana, who started out "normal." The novel follows her thoughts and feelings into the abyss ... and back out. If you're a family member or friend who wants to throttle their anorexic loved one, this book can help you understand the psychology of suffering from this condition. If you're full-blown anorexic yourself, I'm so sorry. This book contains the sentences that helped me break out of the mind-space that could have killed me. If you just have a weird relationship with food, you might find yourself examining why you initiated your set of rules that determine when you can eat, why, with whom and how much. And if you just like contemporary young adult novels that ask really hard questions about growing up, you might like it as a read.

The next few weeks are going to be really hard for a lot of people who struggle with their relationship with food. For some, it's never "just a doughnut." If you're anorexic, taking one bite more than you planned can feel like bungee jumping off a bridge. I remember wondering why these people who loved me kept asking me to put myself through that. So be kind if you see someone staring in misery at her plate on Thanksgiving. Eating disorders are nobody's fault, and recovery takes a village. Take care of each other.

She Can't Tell the Difference
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I was just looking at Twitter and saw a link to Alison Gresik's post on the night she almost went crazy. I wasn't planning to post today, but then I read this:

We were nearly home when I tried to make up for how pissy I’d been. This is not about you, it’s about me, I said.

And that’s when Shawn got really angry.

How dare you get this upset and then say it’s not about me? It’s impossible for me to tell the difference, and it’ll certainly be impossible for a child to tell the difference. You can’t keep doing this.

She goes on to explain how her brain took that and spiraled it into suicidal thinking, and then the next morning pulled it together to face a challenge that to someone not afflicted with mental illness might seem like nothing: taking a broken car to a mechanic.

I understand.

Last week in the midst of all the Hillary Adams beating post comments, I felt my anxiety starting to rev out of control. I had just a visceral reaction to that video. I also have noticed that since I went off The Pill a few years ago that my moods are getting more extreme at times, more like they were when I was in high school and college. 

The morning after I put up the post, I took Petunia to the vet. Petunia hates the vet. She got wrapped in a towel there once when I wasn't there and ever since then she needs to be sedated to go and will still hiss and try to bite anyone, even me, who approaches her when she's there. She has to wear a bonnet that keeps her from being able to see or bite, and even so, she tries to bite. The vet is trying to desensitize her, so she sat and talked to me for what felt like hours while Petunia trembled and growled and hissed in my arms. Finally, she started talking to me about cleaning Petunia's teeth and the anxiety peaked and I started to cry. I wasn't making any noise, but the hot tears were just rushing down my cheeks and there was nothing, NOTHING I could do about it. 

"You're really upset, aren't you?" the vet asked. 

"I've had a hard week. I'd like to go home." I thought about trying to explain anything to this woman and realized it would be pointless. I knew it would be a while before I could stop crying, even as I understood intellectually that I wasn't really that upset about cleaning Petunia's teeth or even Hillary Adams, who is now 23 and years removed from that horrifying beating. Hillary Adams was a trigger, Petunia's growling was a trigger, just in the past Hurricane Katrina and 9/11 and my daughter's conference with her talented and gifted teacher in which the same tears ran down my face as I asked the teacher to let me know if she sensed too much perfectionism in my daughter, that perfectionism went with anxiety and eating disorders for me and I really hoped my girl wouldn't ever sit in front of a kind teacher who doesn't really know her and embarrass herself by bawling when nothing at all is wrong.

That's the thing, though -- when you have anxiety, nothing need be wrong. Life itself can feel pretty insurmountable, even as you recognize there is nothing wrong. Cats go to vets, cars need to be fixed -- it's not the end of the world. 

But the part of Alison's post that really got me was the part about husbands and kids not being able to tell the difference between your being mad at them or at yourself or at nothing at all but displaying this emotion that makes no sense. I've tried to insulate my daughter as much as I can from my anxiety, but when you live with people, it can be hard. Especially when you're alone with them as much as I'm alone with my girl. As a result of seeing me cry sometimes for no reason and telling her hey, it's not you, I'm  just sad and sometimes I get sad and I don't know why, hold on, I'll stop in a minute, I hope she is kind to herself if she ever cries for no reason. I want to make the world perfect for her but I know that I can't and actually I shouldn't, because if I did, she wouldn't know her own strength. She wouldn't learn to self-soothe. Just as I would tell her these things if I had a twitch or Turret's or some other behavior I couldn't necessarily control that might look alarming. 

I've stopped beating myself up for irrational crying. It doesn't happen every day -- it doesn't happen now as often as it did when she was a baby and I was really messed up. When it happens, I try to do things I know will help. I sleep. I exercise really hard. I write. I read a lot. I take hot baths. And I let myself cry, because it does seem like there's something in there that needs to get flushed, and maybe the crying flushes it. Often I'll feel perfectly fine hours later and I know that is confusing to the people around me. The truth is that when that sort of crying or anger happens, it's not actually based on anything other than my brain. It's different from when I cry because something someone dies or because I know I hurt someone. I make noise when I cry like that. This crying -- it's just like a faucet. 

The vet's office manager called the next day to see if Petunia was okay and if I was okay. She's a nice person and I saw on her face and the vet's face that they thought something horrible had happened to me to cause such a reaction. I don't really want to get into it. I wish I hadn't had to take Petunia to the vet when I knew I was in high gear. But life doesn't stop just because you're anxious. I don't think it should. In order to have faith in myself that I am okay, I have to get in the car and take the cat to the vet even if I'm crying. I have to make my daughter dinner and do the laundry and go to work. And because I still do all those things, because I know the difference between real sadness and anxiety sadness, I feel okay about it. I know people in my life think I should get stronger drugs or go see a therapist again, but the truth is that it passes, I don't want to hurt myself or others, I know how to care for myself and I'm learning not to drag other people into my anxiety when it's happening -- it's best to go in a room and let it go, just like a headache or other type of chronic pain. People with mental illness live like this, just like people with diabetes live like this. You manage the pain. You take care of yourself as best you can. And you try not to freak out when it escalates -- you manage it back to a safe level. It's possible my antidepressant needs to be adjusted, and I can look into that, but here's the thing: There isn't a magic pill that I'll take that will make me wake up tomorrow with anyone else's brain. It will be my brain that will still try its old tricks and maybe we can stop a few more of the downloads of chemicals from coming through, but it will still try. There might be a pill that helps a little more, but we're managing this, not fixing it, and that is okay. I don't expect to never cry for no reason again. I expect to be able to cope effectively with it when I do and to make it stop as soon as possible.

I can't always control my triggers or my reactions, but I want the people I love to know I'm okay and I love them, but I don't know that I can be "fixed." I can manage this, and I'm trying very hard.